Wednesday, December 7, 2011

Vulnerability

I feel so incredibly physically vulnerable these days.  Dec 9th, 2 days from now is my 2 year anniversary of H1N1, steroids and disability and illness.  I am so much weaker and in rough shape compared to how I was.  I am never sure how much I can handle in one day.  I have decided to wake up every day and say "I'm sick" and do what I can....if it's sitting then so be it.  Try much harder to manage my spoons.  No plans for tomorrow so rest will be good.  I'm not as good at it as I would like to be.  I have so much I want to do.  I have so much support, especially from my spoonies, Kara & my mom but I worry that I rely on my mom too much. 

Also missing my Dad more and more as Christmas approaches.  One day at a time when it comes to that, right.....

I know I can struggle and accept this...it is just so difficult.  I really want to know if I'll ever get better or if I'll ever be able to stay off this couch for more than a couple hours.  Or if I can stop with so many meds that only kind of help. 

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